Tuesday 31/7/07...
This morning i was up at 7am. I had a restless night tossing and turning. "?" came in at 8:30am he was a lot better than he was yesterday. I tided round this morning, then got myself ready for my appointment with the neurologist. When i got to the neurology clinic, it was absolutely crowded and no seats and i was pleased that i did'nt have long to wait before i was my turn.
It was 3pm when i got to see Dr.Chaudhuri. He asked me some questions, but i could'nt get my words out and kept stuttering everytime i opened my mouth, so i gave him my notes that i had of the symptoms that i'm receiving. ( my manuscript...lol ) He read what i had written and i answered his questions then he done some examinations. I mentioned a couple of things that i had written down and he said he already knows whats happening to me from the MRI scan i had done last year and he said he's not going to opperate as it is a complicated opperation, but will try with medication to help with the pain i'm receiving from ACM. He gave me some tranquilsers, but in a small dose it acts as a pain killer and said i can be refered back to him again at a later date. He is also sending me for physio as he thinks it might be of some help to me and i've to have a full blood count test and one for Thyroids, which i can have done round my local clinic...I don't know what the medication is called as i could'nt read the writting.
As i came out of the Neuro clinic, i took my prescription over to phamacy. After waiting half hour, i went up to the counter and asked how long will i have to wait, the girl said another hour and a half. I said i would pick it up another day as ithad gone 4:30pm when i came out of the hospital. I will wait untill my GP gets a letter from the hospital and get my prescription from him.
To be honest i still feel in the dark about this Arnold Chiari Malformation condition, because still nothing was explained to me. I only know what you have told me about Chiari Missie and what i have read online for myself.
All the symptoms i'm receiving for this condition are in my Health Journal which you will find on my side bar...it is the very first entry. I had no idea at all what was wrong with me at first, infact i thought i was going crazy or something as i was told it was all in my mind and i was fobbed off by my GP for a long time before i had some heated words with him to send me to the hosptal. I think it was about 3 years ago now when i was first refered to the neurologist and i had to wait 1 year for my first appointment.
After "?" had left at 6:30pm i phoned "L" she said, "ST" is coming round tomorrow. Then "SH" phoned me around 7:30pm, she said she had to take "Z" to the Drs today as she had an upset stomache and was in pain, she has got an infection in her stomache and has got anibiotics for it...
Well, i have managed to add a few more graphics, maybe it was due to me having no security for a while??? thats all my news for now, so best wishes to you all and have a great week...
7 comments:
I'm so sorry you really don't undertand chiari and all it's havoc it causes on the body. Send me an email and I'll try to answer your questions. I wish you lived over here so you could come to support group meetings. They'd do you good!
Missie
Will read up, Astra. Hope things can be sorted to the extent that the condition has a minimal impact on your quality of life.
Bad the health professionals haven't explained your condition to you & maybe given you a support group (do they even have them there?).
Keeping you in my prayers.
Hugs,
Sugar
That it typical of todays health service Astra.All that long waiting is diabolical.Then having to wait for the prescription too.Grrr.My surgery has it's own pharmacy but I take my prescription away and call at the local chemist it's much quicker that way.If you leave it at the surgery here sometimes you have to wait two days to collect it.What goods that I ask you ? the system is NIL.I hope you soon feel better on the new medication.I feel the Specialist should have explained more to you though.Next time you go stand your ground and ask for an explanation.You are entitled to one,no matter how long it takes him.Thats what he gets paid for.Take Care God Bless Kath
astoriasand http://journals.aol.co.uk/astoriasand/MYSIMPLERHYMES
All that waiting around only makes you feel worse ,I hope you get some answers and some satisfaction soon ..love Jan xx
Glad you had your notes (Manuscript :o) to give to the Doctor ~ I wish they had explained your condition to you ~ and isn't it bad you had to wait so long to see the neurologist ~ I just hope the medication they have given you help with the pain ~ Ally x
http://journals.aol.co.uk/ally123130585918/Lifewithally
Astra, I will keep you in my prayers. I don't know anything about it...and your doctor should have explained it toyou...sounds like you have a doctor like I do. Many hugs to you!
Lisa
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